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A Parent’s Guide to Children’s CancersAn introductory guide to childhood cancer including information on incidence, diagnosis and tests, staff involved in the care of the child, treatment, side effects and a question and answer section. Factsheets on individual tumour types accompany the guide.
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How to help Brothers & SistersThis leaflet provides ideas on how best to help brothers and sisters of children with cancer to cope with the illness. It is aimed at the many adults who come into contact with brothers and sisters such as aunts and uncles, grandparents and teachers etc.
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My Brother has CancerThis is a story about a brother and sister of a child with cancer and how they cope with the illness and the changes it brings. It is aimed at brothers and sisters up to 9 years old.
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When your Brother or Sister gets CancerThis booklet provides facts about the disease and its treatment and is aimed at 9-16 year old brothers and sisters. It contains photos and quotes from brothers and sisters about their experiences.
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Grandparents: A guide for grandparents of children and young people with cancerThis booklet covers the three main areas of concern for grandparents – questions on the nature of childhood cancer and its causes, ways in which grandparents can help their families and how grandparents themselves can get support.
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After CureAfter Cure is aimed at young people aged 16+ who have survived cancer. The booklet covers a variety of topics such as follow up and future care, education, jobs, disability issues, life insurance, mortgages, fertility, travel, information about survivor groups and useful links. The booklet can be found on www.aftercure.org together with factsheets about the effects of different treatments on different parts of the body.
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Ben’s Bone Marrow TransplantA colourful and beautifully illustrated booklet aimed at young children preparing for a bone marrow transplant. It follows the story of Ben, from his initial visit to the Bone Marrow Transplant Unit through treatment, managing side effects, exploring emotions and what happens after discharge from hospital.
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Stem Cell TransplantA colourful and beautifully illustrated booklet aimed at teenagers and young adults preparing for a stem cell transplant.
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ChoicesSuggestions for parents when curative treatment for their child is no longer an option.
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Facing the Death of Your ChildA guide for families covering all aspects of bereavement.
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Bereavement: where to go for helpA guide for families and professionals when a child or young person has died from cancer.
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Brain and Spinal Tumours in Children and Young People – A parents guideA Parent’s guide to Brain and Spinal Tumours in Children and Young People, The booklet covers all stages, from initial diagnosis to long term follow-up. Factsheets on individual tumour types accompany the guide.
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What’s the point of coming to clinic?This booklet explains the purpose behind attending follow up clinic, the tests that are performed there and promotes the need to adopt a healthy lifestyle.
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Resources for school staffA leaflet to inform all school staff of potential sources of support when a pupil is returning to their school after treatment for cancer, or while still on treatment.
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Children with cancer and petsInformation leaflet for parents and carers of children with cancer who own pets. Provides simple guidelines on reducing the risk of catching an infection from a pet.
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Getting the best from the Internet? A guide to childhood cancer resources onlineThe internet is a rapidly growing source of information. This leaflet aims to help you find information on cancer care and treatment for young people and children that is reliable and user-friendly.
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End of Treatment What happens Next? A guide for parentsThis booklet for parents and carers of children with cancer aims to help answer some of the many questions and concerns that arise when the child finishes treatment for cancer.
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End of Treatment...what happens next?This booklet aimed at 10-16 year olds aims to help answer the many questions and concerns that arise when young people finish their treatment for cancer.
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DexamethasoneThis leaflet offers help to parents in managing the behaviour of children during maintenance treatment for Acute Lymphoblastic Leukaemia (ALL) whilst taking Dexamethasone.
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Biological Studies and Tumour BankingFrequently asked questions for parents and young adults on all aspects of tumour banking and biological studies.
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A Guide to Clinical Trials - For parents and young peopleDesigned to help parents and young people understand more about clinical trials.
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Childhood Cancer – A fact sheet for GPsThis fact sheet provides an overview of childhood cancer including background, problems during treatment, late effects and palliative care.
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Reflections on Childhood Cancer: A Book of PoemsThis 28 page book of poems includes contributions from parents, patients, siblings and others touched by childhood cancer. It is moving, inspiring, touching sad and often humorous.
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Quest for CurePublished in December 2002 to mark the 25th anniversary of the UK Children’s Cancer Study Group (UKCCSG), Quest for Cure provides a fascinating account of the work of the Group. Interspersed throughout the book are the stories of the patients themselves, past and present. The book has been designed to appeal to professionals and families alike and, provides the answers to the many questions people always ask.
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Contact magazineContact is a free, quarterly magazine for families of children and young people with cancer and for anyone with an interest in childhood cancer. It provides reliable up to date information on childhood cancer, treatment and research as well as stories from patients and families relating their own experiences.
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Cancer registration for children and young people
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CCLG/Cancerbackup publication
Available from Cancerbackup tel: 0808 800 1234 or order at 
Email: 
Contact details for the CCLG:
Rene Marston
Tel: 0116 249 4460 or email itm2@le.ac.uk
Contact details for CLIC Sargent:
Further supplies from CLIC Sargent Childcancer Helpline
Tel: 0800 1970068 or email helpline@clicsargent.org.uk
Details of the above publications and more can be found in the leaflet ‘Childhood Cancer Publications – CCLG and other’. Download here (PDF 552kb) or contact the CCLG for supplies.
